The quality of life when a person is affected with Huntington's changes the way you are able to spend your time. It affects the social aspects of your life, the communication, the pain endured, and unstable mental state. This isnt only limited to the patient but to the partner, caregiver, or family. Some will not be as affected as others, it all depends on the person and the stages you are at in the disease as to what your limitations and opportunites will be. For instance if one was very active in sports, after you have been diagnosed you will not be as able to be active and mobile. You will be forced to rely on other people, and tolerate pain and increased injuries.
A quote from Marsha L. Miller, Ph.D. about this:
"The difference in partner and patient perceptions may have real consequences for quality of life. If a caregiver perceives a partner as more impaired than is objectively the case, that caregiver may inadvertently push the patient farther into the sick role than he or she needs to be, possibly resulting in social isolation, loss of vitality, and lost earnings. If a patient perceives himself to be less impaired than he is objectively, he may drive or engage in other activities when it isn't safe, become alienated from friends and family over meaningless quarrels. He may persist in working at a job he can no longer adequately perform and risk being fired when he could have retained benefits by going out on disability. "
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Works Cited
http://hdlighthouse.org/treatment-care/care/managinghd/updates/1450caregiving.php
A quote from Marsha L. Miller, Ph.D. about this:
"The difference in partner and patient perceptions may have real consequences for quality of life. If a caregiver perceives a partner as more impaired than is objectively the case, that caregiver may inadvertently push the patient farther into the sick role than he or she needs to be, possibly resulting in social isolation, loss of vitality, and lost earnings. If a patient perceives himself to be less impaired than he is objectively, he may drive or engage in other activities when it isn't safe, become alienated from friends and family over meaningless quarrels. He may persist in working at a job he can no longer adequately perform and risk being fired when he could have retained benefits by going out on disability. "
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Works Cited
http://hdlighthouse.org/treatment-care/care/managinghd/updates/1450caregiving.php
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